Medical Treatment of Breast Cancer: A Patient’s Experience

Video 1: Nini (M596) is a 38-year-old female from Indonesia. In September 2008, she found a lump in her left breast while bathing. This was diagnosed as adenocarcinoma. In January 2009, she went to Guangzhou, China for treatment. An imaging procedure, done on 14 January 2009, showed a lump about 1.8 x 2.6 cm in size. Pathological study indicated infiltrating lobular carcinoma, Stage 2.

In China, Nini underwent a radical mastectomy. Axillary nodes (0/4) were negative for cancer. Immunohistochemistry indicated ER and P53 negative, PR and HER-2 positive.

After the surgery, Nini received 3 cycles of intra-arterial chemotherapy using Cytoxan or cyclophosphamide, epirubicin and 5-FU.  The first two cycles were alright but during the third cycle Nini suffered alarming side effects and she decided to stop the treatment. She was asked to undergo radiotherapy (25 times). She refused. She was asked to take tamoxifen. She refused.

Nini found CA Care and came to see us in Penang on 1 July 2009. She learned about CA Care from a patient in China. When she returned one of her customers brought a book, Kanker Mengapa Mereka Hidup (Cancer Why They Live). She was amazed at this coincidence.

Video 2: While bathing Nini heard a voice whispering into her right ear asking her to feel her left breast. She automatically placed her hand on her left breast and felt a lump. She went to seek the advice of the best doctor in town and was told that it was a carcinoma. She decided not to seek treatment at the local hospital.

Video 3: With the help of a friend Nini had an appointment to see a doctor in Singapore. However, another friend told her not to go to Singapore for treatment – nine of ten patients who went there did not make it – they died. She was told to go to China instead. So to China she went.

Video 4: Nini underwent intra-arterial chemotherapy and she described the procedure in detail.

Video 5: Before going to China, Nini read about chemo side effects from books.  And when she received chemotherapy in the hospital in China, she felt unhappy with the treatment.  After the third chemo, she decided to go home immediately, not wanting to continue with the treatment anymore.

Video 6: The doctor told Nini and her husband that surgery would provide a 100% cure of her breast cancer. But it was not to be. She had to undergo another surgery a month after her mastectomy. Nini refused and felt cheated.

Video 7: Nini suffered some side effects of chemotherapy. Twice her tongue became short or shrunk. This happened after the first and the third chemo. Besides that Nini suffered chemo brain after chemotherapy.

Video 8: When asked how she felt having lost a breast, Nini replied that it was okay after having had an assurance from her husband.

It is unfortunate that the doctor had found it fit to say that surgery could provide a 100% cure for breast cancer. The fact is, surgery does not cure cancer if it has already spread.

A month after the mastectomy, lumps were found in her left armpit and also right neck. The doctor suggested another surgery. Nini refused. This problem became a source of concern for Nini. To find some peace, Nini went to Bali to learn how to meditate. She felt better and more at peace.

When asked if the doctor had ever asked Nini to take care of her diet, the reply was: No, eat anything you like. We cautioned Nini not to believe such an advice. She needs to take care of her diet, which she already did after reading some books.

Our final advice to Nini: Follow what your heart says

Surgery and Radiotherapy but No Chemotherapy

Fay discovered a small lump in her breast in April 2000. She did not seek medical help immediately but opted to take herbs instead. A year on herbs and a change of diet did not make the lump go away. Disappointed, she gave up herbal therapy and went on to eat anything she liked. The lump in the breast flared up and became very itchy. Fay decided to undergo a lumpectomy in July 2001. This was followed by fifteen times of radiation. She declined chemotherapy but took tamoxifen for two months and then stopped. She switched to CA Care Therapy in January 2002, i.e., taking herbs and changing her diet and lifestyle. It has been seven years and Fay has led a normal, happy and healthy life.

On 27 August 2007, we requested Fay to share her healing experience with us. The following are excerpts of our conversation.

After removing your lymph nodes, what else did the doctor want to do?

He wanted me to do radiation and chemotherapy. One of my relatives knew this doctor.  We also found out that the treatment at the University Hospital (UH) was cheaper.  So, I requested him to write me a referral letter to UH.  He wrote the letter for me.

What happened at UH?

I saw Dr. N.  She was quite a young lady. She said since my cancer was Stage I, I need to do radiation and chemotherapy. But I told her:  If it is Stage 1, why must I do chemotherapy?  If you want, you can do radiation for me.  No need for chemotherapy. Dr. N looked at my file and said:Okay.  We’ll do the radiation, fifteen times.

Why did you not want to do chemotherapy?

Because I did not want to lose my hair. I saw my sister-in-law – all her hair dropped.  Patients in the oncology ward were all bald.  I did not want to go through that.

If chemotherapy did not cause “baldness”, perhaps you would have gone along?

Yes.  That was the reason at that time. I did not know then that all these chemo-drugs were so toxic.

How did you get to know us at CA Care?

One day my sister brought a photocopied book, Food & Cancer that you wrote. This was given by her friend, Raja Mariam (you and I do not know her). My sister and I were looking at the book. Then my sister said: We should follow what the book says about cooking oil. Since the CA Care centre is just nearby she asked me to go over and get the original copy.  I came and met Khadijah.  I cannot remember what she told me, but she also asked me to take the herbs. I explained that I may not be able to afford them. But she asked me not to worry about it.  I took the herbs home and consult my sister and brother-in-law. I asked Tok (brother-in-law) whether the herbs were appropriate for me.

You brought back the herbs and asked Tok about them?

I said: I heard that these herbs can cure cancer.  He said: Ya. Ini baik. (Yes. This is good.  Note: Tok is a Muslim spirit and he talked Malay through Fay’s brother-in-law).

Then I said: I heard that tamoxifen is not good.  If I take it,  may it cause uterine cancer? He said:Lama-lama boleh jadi. Ini tamoxifen jangan makan. (After some time, this can happen. Do not take tamoxifen.)  When I asked what to do with the tamoxifen he had blessed, he replied: Take the tamoxifen that I have blessed for three months. After that, do not take the tamoxifen anymore. Take the herbs instead.

That was what you did. You took tamoxifen for three months?

Yes.  He asked me to take the herbs. They would cure my cancer.

After being told all these, how did you feel?

I felt comforted. I did not go back to the oncologist anymore. I believed the herbs would help me.

 

Healing of Breast Cancer With CA Care Therapy

Siew was 55 years old when she detected a small lump in her right breast. Prior to this event, she was on HRT (hormone replacement therapy) for two years. Siew consulted two doctors about the lump. One doctor brushed her off saying: Since there is no pain, there is nothing to worry. Come and see me only if you have pain. Another doctor, a surgeon did a botch biopsy – taking off only a part of the tumour in her beast. Disappointed, Siew left the matter as it was until the remaining tumour in her breast grew bigger and her breast hardened.

After six months the same surgeon called and warned Siew that the cancer could kill her. This awakened Siew to the seriousness of her problem. She sought the help of another breast surgeon and underwent a mastectomy. After the surgery she was asked to undergo chemotherapy. Siew hesitated and asked if she could seek other options instead. This compassionate doctor did not object to alternative treatment. Siew was subsequently referred to us and was started on herbs inSeptember 2002. She has been on herbs ever since. It has been more than six years and Siew is doing fine.

Medical reports

29 November 2001: Right breast lump biopsy: The tumour cells are seen close to the resected margins. Diagnosis: infiltrating ductal carcinoma,           Grade 2.

19 July 2002: Right breast: 2 solid lesions with ill defined borders at 9 o’clock region close to the nipple region. Each measuring 12 x 13 mm and 7 x 6 mm.

7 August 2002: Right breast tumour 2.5 cm, infiltrating ductal carcinoma, grade 2.  Surgical margins are clear. Three out of 17 axillary lymph nodes contain metastatic ductal carcinoma.

Estrogen receptor: Strong positive. Progesterone receptor: Strong positive. P53: negative.

On 23 December 2007 we interviewed Siew. Below are excerpts of our video-taped conversation:

At this point in time, how do you consider your health?  Are you healthy?

Yes.  I can do whatever I like. I can clean my whole house by myself. I have no problem with that.

In these five years since your diagnosis, did you ever feel sad thinking of your cancer?

Initially, yes – but now no more.

Did you ever think that you might get a recurrence?

No, never thought of that.  Of course I know I have a serious disease, but it did not occur to me that I will die of it. But whenever I hear of people get a relapse, I thought there is also a possibility that it could be me.  But, I do not dwell on it.  I just think of the possibility of me getting a recurrence.

Looking back at all that you have done … would you go on HRT?

No.  I will not take the hormone pills.

If a lady has a lump in her breast like you did, what would you advise her to do?

I would recommend her a certain doctor.  But if she is not happy with the doctor, she must seek a second opinion.  Do not do what I did – simply follow whatever the doctor said without finding out more.

From the time you found the lump, would you do things differently from what you did?

Yes.  I would find a better doctor who could remove the lump completely with a clean margin (lumpectomy).  Then I may not have lost my breast at all.

What if after removing the lump, the doctor asked you to go for chemotherapy and radiotherapy?  Would you follow his advice?

Unless I know about someone who can take care of me, like you and CA Care and if I have no choice, I would follow what the doctor advised. If I have to choose between herbs and medical treatment, I would definitely choose herbs.  I’d always wanted to take herbs.  I do not want chemotherapy.  If I don’t know about CA Care, then I cannot help it.  Even after five years taking the herbs, I still wanted to continue taking it.  As for the taste, I still find it very strong despite taking it for so long.  I have not grown accustomed to it.  (Laughingly)

Besides taking the herbs, you had to change your lifestyle and diet.  Were you angry with us about that?

No.  I accepted what must be done for my own good.  Of course, initially I complained about the difficulty I encountered – having to change the way I used to cook, and what I could eat.  But I did not blame you.  It is part of the healing path.  Also, I did not realize that there was sea-salt which I could use to replace the normal table salt.  So, all my food was without salt.  It was so difficult to eat as I found the food tasteless.  As I visited CA Care centre more often, I learnt about the sea-salt, the liquid amino and the different ways of healthy cooking. Things brightened up and I was happier.  Now, I have no more problems preparing my food.

How long did it take for you to get used to the changes?

About half a year.

You were supposed to take herbs, change your diet, exercise and learn to relax.  Which is the most difficult thing to do?

The most difficult thing was taking the herb – Breast M Tea. Whenever I took Breast M, my tongue goes le le le le (demonstrating with tongue moving up and down quickly and laughing gleefully).

You have taken the so called “unproven” path for your healing, were you harassed or under pressure by anyone about this?

Yes.  My relatives asked: Are you sure the herbs are that good?  Can the herbs be trusted?  Must you abstain from so many foods?  Must you go through so much difficulty? They would urge me to eat whatever they cook even when I told them I have to abstain from those foods. They then told me: No need to abstain from anything.  You eat vegetables.  Vegetables also have poison(pesticides).

Do you believe them?

They can say what they like, but I do not listen to them.  I do not believe what they say.  Why must I listen to them and change my ways?  I am so well up to this day.  Why must I change and take chances.  So, I told them that because of the herbs I am taking, I have to abstain from all those forbidden food. This is to cut short the discussion and having to explain so many things to them why a healthy diet is so important in the healing of cancer.

If we were to say: You can now eat whatever you like. Would you?

No. I would not. Not the oily and deep fried food.  I can see how bad they are now, such food like satay. Children love it.  Now we know how unhealthy it is.  As for me, I would not take even a piece of meat.

You win because you are not calculative. You listen to advice.  And most of all you are willing to change.  Your willingness to change is important.

Speaking of change, my husband’s brother-in-law said: You stupid girl. Cannot eat this, cannot eat that, and cannot eat everything.

Ten Years On CA Care Therapy

Lian was 57 years old when she came and see us. Sometime in 1996, she underwent a hysterectomy. She was put on hormone replacement therapy (HRT). Three years later, she suffered left breast cancer. She underwent a mastectomy in July 1999. It was a medullary carcinoma with no metastasis. She was asked to undergo chemotherapy but declined. She took tamoxifen.

Lian came to see us in November 1999 and was started on the herbs. She then decided to stop taking tamoxifen. It has been 10 years since she was diagnosed with breast cancer. She is doing well and has no problems whatsoever. She is very much alive!

Pathology Report: 27 July 1999: Left breast lump – 3 x 2 cm. Case of medullary carcinoma.

Blood Test Results

——————-Dec. 99    Aug. 03  July 06     Nov. 08

ESR                     12            16             19            25 H

Haemoglobin     13.3         14.5          14.0           13.8

Platelet               302         365           330            302

WBC                      4.8          5.3           5.5             5.9

CEA                       1.0          0.9           1.0             1.5

CA 15.3                 n/a          11.1         10.4           14.5

Comments:

Lian is indeed a sweet and pleasant lady. She speaks softly and is totally ignorant of what she is up against, perhaps due to her lack of education. She is a person who follows and fears authority. As such she follows instructions well. She takes her prescribed herbs very religiously and also keeps to her diet.

Lian declined further medication after coming to see us. She did not want any chemotherapy or tamoxifen any more. We could still remember this frail looking lady who came to see us 10 years ago. We could not imagine how she could survive the chemotherapy if she were to undergo the treatment. The side effects of chemotherapy are not like ant bites as some were told.  Even without chemotherapy and tamoxifen, Lian does not suffer metastasis. Over the 10 years that she is on herbs, she has not encountered any discomfort or illness at all.

Although Lian is not an educated lady, she has the courage and the commitment to take a different path to healing. She is well rewarded for that adventure. Lian is not alone to try this adventure. There are many others like her. But we do not advise you to embark on a similar journey if you do not believe in what we do or have the commitment to help yourself. Success does not come easy, and there is no magic bullet for cancer.

In Lian’s case we can see the evil in HRT. She ended up with breast cancer. This is not an isolated case linking breast cancer and HRT. We have come across many cases such as this.

After Mastectomy Chau Took Herbs and Changed Her Diet. Her sister died after medical treatment

Chau (not real name) is a 43-year old female from Johor. She had a lump in her right breast. A biopsy indicated cancer and subsequently she underwent a mastectomy. Chau was indeed in a dilemma when she came to see us. Her 47-year-old sister also had breast cancer. She underwent surgery, chemotherapy and radiotherapy and within a year was dead. Chau was under intense pressure because her oncologist insisted that she undergo chemotherapy and radiotherapy after her mastectomy. She and her brother came to seek our help in May 2004.

I remember saying this to Chau: Don’t worry. I do not think that you are going to die within a year like your sister. Of course, I cannot guarantee that because I am not God. But my experience with breast cancer showed me that even if you do NOTHING, you will not die of breast cancer within a year.

Chau was started on the herbs and was told in no uncertain terms that she must keep to the good diet. I also asked her to go for a blood test, as a baseline for monitoring her progress. Six months on the herbs Chau came back to see us again. I told her: if you live another 6 months, then it means that we are doing the right thing. Remember, your sister died about a year after chemotherapy and radiotherapy.

Chau came to see us again in April 2005. It was almost a year after her initial visit. She was doing well but was very unsettled and concerned as her doctor was still insisting that she go for chemotherapy. I told her: It has to be your choice! Why do you need chemotherapy or radiotherapy? Your sister had chemotherapy and radiotherapy and she died. Remember what Einstein said: Insanity is to do things over and over again and expecting different results. If you do the same things as your sister did, you might end up with the same result – dead.

Pathology Report: 27 April 2004

Infiltrating ductal carcinoma of breast. Size: 1 cm in diameter. Histologically grade 2. Margins of excision are close to tumour. One of 10 axillary lymph node is positive for metastatatic deposits.

Blood Test Results

May 2004     Sept.05   Sept 06

ESR                     23 H            4            12

Haemoglobin     11.6           12.1         13.3

Platelet               240            199          228

WBC                    3.89            6.9          6.1

CEA                     1.0               0.6          0.5

CA15.3                4.4               4.9          5.4

As I am writing this article, Chau’s brother called – what a coincidence! He told me Chau is in perfect health. And this is January 2009, meaning Chau has been well (minus having to endure the agony of the intended toxic treatments) for almost 5 years now. There is every reason to believe and hope that she is going to be able to live for many more years to come.

Comment: We are grateful to God the Almighty that Chau is still alive and well. This is what all patients should feel – be grateful. Chau took a different healing path from her elder sister. However, it is most unfortunate that she had been put under a voodoo curse – without chemotherapy or radiotherapy she would not be cured.  There is no truth in such an assumption.

 

 

Better to Die Than to Suffer

May (not real name) was a 55-year-old lady. Her husband had died of a heart attack three years before, at the age of 62. May was diagnosed with right breast cancer in 2000. She underwent a mastectomy followed by six cycles of chemotherapy. After that she was put on tamoxifen.  Three years later, the cancer spread to the right side of her breast in spite of the fact that she was on tamoxifen all these years. May underwent another six cycles of chemotherapy followed by twenty sessions of radiotherapy at the neck and breast areas. Unfortunately, the cancer spread to her neck. She underwent another four cycles of chemotherapy.

From July 2005 to March 2006, she was put on the oral drug, Femara. Then from April 2006 to July 2006, she was on Xeloda.

Her daughter told us that May suffered unbearable pains. When she could not stand the pains she just took off her clothes and ran around the house. At one time May tried to jump out of the window to commit suicide. The arms and areas of her breasts and shoulders were turgid and hard. She felt hot inside. She decided to give up further medical treatment and sought our help at the end of July 2006. The following pictures can tell a better story about her agony.

Comments

Andrew Weil (in Health and healing) wrote: There is never ending struggle … patients are sucked into same way of thinking … finding themselves more and more dependent on the system giving one treatment after another.

Professor Jane Plant (in Life in your hands) wrote: This sounds like a battle between the disease and the treatments – with the patient as the battle ground …Conventional cancer treatment can process patients to the extent that they no longer understand what is really being done to them.

Dr. Lai Gi-ming, Taiwan Cooperative Oncology Group, National Research Institute said: The thing that most frustrates modern doctors is that, after surgery, chemotherapy and radiotherapy, all they can do is keep chasing and chasing the cancer!

 

Fransiska Died After Surgery, Radiotherapy, Chemotherapy, Herceptin, Tamoxifen, Xeloda and Tykerb

(Life on earth is a living experience. Let the death of Fransiska be a lesson for many of those who come after her).

Fransiska, from Jakarta, was thirty-two years old when she found a 1.6 cm lump in her left breast which was diagnosed as cancer. At about the same time, her father had died of cancer. In November 2004, she underwent a lumpectomy in a Singapore hospital. Unfortunately some lymph nodes in her arm pit were also infected. After surgery, Fransiska received thirty-five radiation treatments. She was well after the treatment.

In January 2007, i.e., two years after the radiation treatment, Fransiska was told that her cancer had spread to her lungs. She underwent chemotherapy and received six cycles of Taxol and injections of Herceptin. Each Herceptin injection cost S$2,500 and Fransiska had eight injections. Her oncologist thought she should continue with Herceptin but she decided to stop after eight injections because she could not afford  to pay for the treatment anymore.

In July 2007, Fransiska was put on tamoxifen. A month later, a bone scan showed the cancer had spread to her spine, T 12.

In January 2008, a brain scan showed a 8 x 7 mm mass in her brain. There was also a 1.4 x 9.0 cm mass in her liver. Fransiska was asked by her doctor to stop taking tamoxifen. She was prescribed oral chemo-drugs – Xeloda and Tykerb (lapatinib). A three-week treatment of Tykerb cost S$2,500.

Fransiska told us that she was aware of the “bad effects” of medical treatment but she had no choice. She did not know what else to do except to seek doctors’ advice.

In November 2004, Fransiska started on a juicing program with apple, beet root and carrot (ABC). She also took apricot seeds (source of Vitamin B17), cloves, black walnut tincture and wormwood. In addition she took IP6, spirulina, Perfect Food and high dose Vitamin C. She stopped all these intake in 2007 when the cancer had metastatised to the lungs.

In February 2005, she underwent a detoxification and rejuvenation program with ABC juicing and coffee enema. She continued to do this until she found traces of blood in her urine. She stopped this program.

Fransiska also took pineapple and papaya.

Fransiska was aware of the need to eat healthy food. She was on fruit and vegetable juices, and she avoided white sugar, oil, egg, all meat and processed food. She took shark cartilage but later stopped it because it was not effective.

She suffered headaches, nausea and had very low blood pressure. Fransiska  went back to her oncologist in August 2008. A scan showed the cancer had spread to her brain.  A CT scan of the abdomen showed:

  • metastasis in both hepatic lobes. The largest lesion in the left lobe measures 2.0 x 1.8 cm and the largest in the right lobe measures 1.5 x 1.4 cm.
  • Sclerotic focus in the T12 vertebral body is stable.

The oncologist concluded that the disease had progressed and suggested two options:

  • Fransiska undergoes more chemotherapy in addition to taking Lapatinib, or
  • She continues taking Lapatinib; receives regular injection to strengthen her bone and take medication to relieve her menopausal symptoms. Earlier, Fransiska was treated with Zoladex to stop her menses.

Fransiska wrote me often to ask for help. The last email I received from her was on 30 October 2008 when she complained of gastric problem. It is with sadness that Fransiska slipped into coma and she died 2 days later, mid-December 2008. Her death came four years after being diagnosed with breast cancer. Even the most expensive and up to date drugs for cancer could not save her.

Comments:

This is a tragic story indeed but which has been played over and over again – breast cancer turned Stage 4 and incurable. What has gone wrong? In fact, nothing had gone wrong! Fransiska followed what her doctor wanted her to do. She received the state-of-the-art medical treatment inSingapore. Yee, a 40-year-old lady from Penang also died in similar way. She had an early stage breast cancer. Underwent surgery, chemotherapy, radiotherapy, took tamoxifen and Tykerb besides receiving Herceptin. She ended up with mestatsis to the lungs, bone, live and eventually brain. She died after spending more than RM 100,000 for the treatment.

At CA Care, over our thirteen years of experience, we observed three phenomena that tend to occur among breast cancer patients.

1. One, our data show that breast cancer patients (in Malaysia) who underwent surgery, chemotherapy, radiotherapy and took tamoxifen suffer metastasis to the bone, lung, etc. after a few years. Those patients (in Indonesia) who turned to traditional medicine or who did not receive the standard medical treatment did not suffer much metastasis or suffered metastasis much later.

2. Young patients who underwent  a full package of medical treatment for breast cancer tend to suffer severe metastasis.

3. Now with the availability of Herceptin, we begin to see patients suffering from brain metastasis. Is there any correction between this treatment and brain metastasis?

We recognise that our observations are anecdotal and therefore can be disputed. A search in the net yielded some results which are indeed worthy to take note of.

The Boston Globe (A new peril for breast cancer survivors by Liz Kowalczk, 7 February 2006) carried a story of Amy Socia who was diagnosed with breast cancer when she was 43 years old. She underwent a mastectomy, breast reconstruction surgery, radiotherapy and chemotherapy. In spite of the medical treatments the cancer spread to her liver and spine. Amy was prescribed the so-called promising drug – Herceptin – and “miraculously” her cancer began to shrink! But it was not to be. Not long afterwards (five years after her initial diagnosis) two tumours appeared in her brain. This led Amy to conclude: “There is no cure for metastatic breast cancer. It never goes away. You just move from treatment to treatment.”

Amy’s story is not much different from Fransiska’s.

Fransiska was treated with lapatinib (Tykerb) and capecitabine (Xeloda).This modern treatment have been shown in one study “to shrink brain metastasis significantly in six percent of 241 patients.” In the official lapatinib website: www.tykerb.com, we can read the following information:

  • There is no cure for metatastatic breast cancer, but it can be treated.
  • Some women may develop liver damage while taking Tykerb. In some cases, liver damage may be severe and may cause death.
  • The side effects of Tykerb include: nausea, vomiting, heartburn, loss of appetite, red, painful hands and feet, rash, dry skin, sores on the lips, mouth, or throat, pain in the arms, legs, or back, difficulty falling asleep or staying asleep, shortness of breath, cough, coughing up pink or bloody mucus, fast, irregular, or pounding heartbeat, tiredness or weakness and swelling of the hands, feet, ankles, or lower legs.

Patients need to remember that to be able to treat cancer does not mean cancer can be cured! To cure is to spend a lot of money but the treatment does not cure. Shrinkage of tumour is also not a cure! Lapatinib causes liver damage.  Is this not what happened in Fransiska’s case?

The side effects of Herceptin include: Fever and chills (commonly occur during the first treatment), breathing and heart failure, diarrhoea, headache, nause and vomiting, pain, skin rash and weakness. However, what are most disturbing are reports about Herceptin and brain metastasis.

A report dated 13 December 2001 by Robert Carlson stated:

  • It is known that patients with metastatic breast cancer are more likely to develop bone metastasis but patients who recive Herceptin appear to be at increased risk of subsequent development of brain metastasis compared to bone metastasis.

The journal, Cancer (15 June 2003, Vol: 97:2972-2977), stated:

  • Metastatic breast carcinoma to the CNS (brain) is common among patients receiving Herceptin.
  • Approximately 6 to 16% of women with metastatic breast carcinoma develop brain metastasis but patients who received Herceptin as a first-line therapy had a high risk of developing CNS (brain) disease (42%).

The question we may wish to ask: how relevant is the above observation to Fransiska’s brain metastases? What could have happened with Fransiska did nothing – would she die of breast cancer within four years?

What could be the real cause of her death?

 

Chemo, Chemo, Chemo and She Died Within Two Years

Tin (M597) was 38 years old in 2007 when she found lumps in her breasts during a regular medical check up. A CT scan done on 21 May 2007 indicated: no lung nodules or abnormal masses or enlarged lymph nodes. In the left axilla are slightly prominent lymph nodes – these are under 1 cm in size. There are no liver lesions seen.

Tin underwent a left mastectomy on 1 June 2007.  The histology report indicated:

  1. Right breast biopsy – fibroadenoma in background of fibrocystic disease.
  2. Left breast (biopsy and mastectomy specimen): multifocal ductal carcinoma in-situ with invasive ductal carcinoma; invasive carcinoma measures 4.3 cm in maximum diameter; DCIS and invasive carcinoma extend close to the deep resection margin; skin and nipple are not involved by tumour.
  3. Left axillary lymph nodes: 4 out of 6 lymph nodes contain metastatic carcinoma, with extracapsular spread.
  4. TNM classification: pT2N2aMx, Stage 3A.

The tumour is negative for oestrogen and progesterone receptors, weakly reactive to C-erb-B2 and strongly reactive to P53. These results suggest that the breast cancer is unlikely to respond to tamoxifen / endocrine therapy.

As with most cancer patients, Tin underwent chemotherapy and radiotherapy after the surgery. Her husband was not sure how many courses of chemotherapy Tin had received. But one thing was sure – she was not getting any better. The oncologist behaved gently and encouraged Tin to continue taking the chemotherapy in spite of her deteriorating condition. She had full faith in her oncologist. According to her husband, Tin received Avastin towards the end of her chemo-treatment. Tin also underwent radiotherapy but her husband could not remember how many times she received the radiation treatment.

A follow up CT scan on 14 May 2008 indicated: no lung nodules or masses seen. Mediastinum remains clear of mediastinal lymphadenopathy. Liver also remains clear of metastatic deposits.

CT scan on 17 February 2009 indicated:

  1. Multiple pulmonary metastases are noted. This shows interval increase in size and number when compared with previous CT dated 22 December 2008.
  2. There is also interval development of bilateral pleural effusions, left larger than the right.
  3. Mediastinal and bilateral hilar lymphadenopathy are seen. This is unchanged when compared with previous CT. There is however interval development of left axillary nodes.
  4. There are now several small subcentimeter hypodense lesions seen in the liver compatible with hepatic metastases. These are not present in the previous CT.

CT scan on 8 June 2009 indicated:

  1. There is extensive pleural shadowing seen in the lung fields on both sides with evidence of associated effusions noted.
  2. This is associated with lung nodules in both lungs the largest of which measures approximately 1 cm in the mid zone of the left side.
  3. A small associated pericardial effusion is seen.
  4. In the lower cuts, the liver outline shows no abnormalities.

Tin’s husband and mother-in-law came to seek our help on 2 July 2009. This is the gist of what we were told.

Tin’s husband and mother-in-law did not seem to agree that Tin undergo such extensive medical treatment but Tin insisted in carrying out what the oncologist wanted her to do. She questioned:Herbs are not proven, what if I took herbs and these do not work. As a result, her mother-in-law was afraid to give further comment. Even when Tin’s condition had turned worse and she became breathless due to fluid in her lungs and pericardium, the oncologist was saying there was nothing to worry. Every three weeks she had to have a blood transfusion. After Tin gets out of the hospital, the oncologist said she should come back to him for more chemotherapy.

Realizing that she was not going anywhere with medical treatment, Tin as last agreed to try our herbs. This resulted in Tin’s husband and mother-in-law flying to Penang to see us. We prescribed some herbs but expressed our skeptism.

On 19 July 2009, Tin’s husband came to Penang again. He informed us that Tin had been hospitalized and was only able to take the herbs for three days so far. Her condition was deteriorating. The doctor had requested the family to take Tin home. At most she would survive for another 2 months. Tin needed oxygen to help her breathe.

All in all, the family had spent approximately S$200,000 for the treatment. Tin’s husband told us: Please try to save my wife.

Barely 3 days after her husband’s second visit, we received this e-mail:

Wed, Jul 22, 2009 at 5:42 PM

Dear Mrs Teo,

Thank you so far for your help rendered by you and Dr. Teo. This morning at 9:21 am, my wife finally passed away after her struggle against the cancer for this past 2 years. She lost her battle ….

Comments: Is losing a battle against cancer such as this something unusual? Definitely not. At CA Care we witness see such disasters all too often. Tin had undergone all the medical treatments necessary for cancer and she died within two years. Where is the proven science in this case?

Granted, Tin’s cancer was serious – Stage 3A, but her CT scan of 14 May 2008 indicated no problem with her lungs or liver. There were also no serious problems with her lymph nodes. But one a half years later, trouble started brewing. CT scan in December 2008 indicated recurrence and it became even more serious in February 2009 in spite of more treatments (more of different poisons?).

By June 2009 Tin’s condition became more critical and she had fluid in her lungs and also her pericardium (heart lining). What had happened? Was this due to her cancer or the results of her treatment?

Often treatments of breast cancer are referred to as Slash, burn and poison. It is also said that these treatments are worse than the disease. What could have happened if Tin were to do nothing invasive and go for alternative treatment?  Having to suffer and to spend S$200,000 but ending up dead within 2 years is no bargain at all.

Dr. Frank Daudert of Pro Leben Klinik in Igls /Innsbruck, Austria said: Doctors give chemo, chemo, chemo. And patients die, die, die. He went on to say: Doctors are blindly giving chemotherapy to some patients while the cancer cells smile and the patients die.

Tin was totally committed to curing her cancer by the medical way. To her, herbalists are quacks and the herbs are not proven. She had resisted seeking alternative therapy or help. According to her family she only agreed to take the herbs in July 2009, and a few days later she died. That was a bit too late! There are many patients who are like her. Let this be a lesson to  numerous others who come after her.

Yee Died After Extensive and Costly Medical Treatments

Life on earth is a living experience. Let the death of Yee be a valuable lesson for many others who come after her.

Yee was 40 years old when she was diagnosed with breast cancer in October 2005. She underwent a mastectomy. It was a Stage 2 disease with no lymph node involvement. The tumour was 3 x 2 x 2 cm in size.

After surgery, Yee received 6 cycles of FAC chemotherapy (5-FU, Andiamycin and Cyclophosphamide). No radiotherapy was indicated. Chemotherapy was completed in March 2006 after that she was started on tamoxifen.

Yee was well for about 9 months. Sometime in January 2007, she noted a swelling in the right side of her neck. A CT scan of the thorax on 19 January 2007 indicated: multiple nodules scattered in both lung fields ranging from 2 to 10 mm. This means the cancer had spread to her lungs.

Yee was given 8 cycle of taxane-based chemotherapy. This treatment was not effective. CT scan on 4 July 2007 showed the nodules in the lungs were progressing.

Yee received more chemotherapy – 6 cycles of Navelbine + Herceptin. This treatment cost about RM 50,000. CT scan in November 2007 showed stable disease. From November 2007 till December 2008 Yee was on the oral drug, Tykerb (lapatinib) 4 to 5 tablets per day. Each tablet cost RM 65.00. At RM 260.00 per day this medication cost RM 7,800 per month. It seemed that the total cost for about 14 months on Tykerb came to about RM 93,000.00.

By February 2008, failures started to show up again. A CT scan on 13 February 2008 indicated:enlarging pulmonary nodules ranging from 0.5 to 2.2 cm.

Six months later, 19 August 2008, CT scan indicated pulmonary nodules are increasing in number and measure from 0.5 to 5.0 cm. Subcentimeter mediastinal nodes are also seen.

In October 2008, Yee suffered right arm pain and there was palpable swelling in the right collarbone. CT scan on 13 October 2008 showed more serious disease progression:

  1. fibrosis in the right axilla.
  2. an irregular ill-defined node in the right infraclavicular region, approximately 2.0 cm.
  3. another small right supraclavicular node, 0.7 cm is also present.
  4. medistinal nodes,size slightly increased from the last CT examination.
  5. pulmonary masses and nodules are enlarging. The largest mass, in the left lung is currently 5.6 cm. Other lesions measure from 1.0 to 4.8 cm.
  6. A new hypodense lesion, approximately 1.0 cm is now seen in Segment 7. This is suspicious of liver metastasis.

In view of the progressive disease, Yee underwent 28 times of radiation treatment starting 13 October 2008 until 1 December 2008, while at the same time continuing with her oral-drug, Tykerb.

On 17 December 2008, York suffered headaches and was unable to sleep. A CT scan done on 19 December 2008, indicated multiple brain metastases.

Yee and her husband came to seek our help on 5 December 2008. Yee’s condition was serious. Her right arm was numb. She had no appetite. She was severely breathless. Even the supply of oxygen to her nostrils did not help at all. She told her husband she would rather die. In early February 2009, Yee was admitted to the hospital where the doctor suggested that she receive radiation to her brain. It was not to be – she died even before the treatment.

This is a tragic case. Yee’s story is similar to that of Fransiska of Indonesia. Fransiska underwent surgery and received chemotherapy, radiotherapy, Herceptin and Tykerb + Xeloda. Fransiska died. She was diagnosed in November 2004 and died in December 2008. Yee was diagnosed with a Stage 2 breast cancer in October 2005, underwent similar treatments and she died in February 2009.

Doctors, the media and patients always look to newer drugs and newer technologies as a new hopefor treating illnesses. We have been hooked and made addicted to the idea that something new is always better. Herceptin and Tykerb are new bullets for cancer which are now beginning to appear in our local landscape. Are they better or dangerous?

From the website (http://www.tykerb.com ) you can learn that:

  1. There is no cure for metastatic breast cancer. But it can be treated. What do you by such a vague treatment? Surely we can treat anything if there is money!
  2. Some women may develop liver damage while taking Tykerb. The cause of this damage is not known. Liver damage may be severe and may cause death.
  3. The most common side effects of Tykerb are diarrhea; vomiting; feeling sick to your stomach; feeling tired; red, painful hands and feet; and rash.
  4. Dry cough or have shortness of breath may be signs of inflammation in the lungs.

Can Herceptin cause any serious side effects? Yes, according to the National Cancer Institute website (http://www.cancer.gov/cancertopics/factsheet/therapy/herceptin)

1.       Herceptin can cause heart muscle damage that can lead to heart failure.

2.       Herceptin can also affect the lungs, causing severe or life-threatening breathing problems.

3.       Herceptin can cause allergic reactions that can be severe or life-threatening. Symptoms of a reaction include a drop in blood pressure, shortness of breath, rashes and wheezing.

4.       Because of these potentially life-threatening side effects, doctors are WARNED to evaluate patients carefully for any heart or lung problems before starting treatment. Do you think they ever do this? In this case, Yee had metastasis (that is not severe problem enough?) to her lungs. As such would Herceptin not make things worse for her? When she came to us she was severely breathless. What could have been the cause?

And one most important question which patients (and doctors?) do not even care to ask: Does Herceptin cure breast cancer? The answer is absolutely NO. Addition of Herceptin to the normal chemotherapy regime prolonged survival by 4.6 months.  Nowhere in the website ever says that Herceptin cures breast cancer. Read the section: Possible Benefits of Herceptin (take note, even the title itself does not seem to inspire much confidence and hope) in its official website: http://www.herceptin.com/adjuvant/what-is/benefits.jsp

Dr. Ralph Moss wrote a report entitled: Herceptin or Deception. Michael Janson, M.D., past president of the American College of Advancement of Medicine gave this comment about the report: Dr. Mossreveals the hollow core of the recent medical reports on Herceptin, showing that it is not what has been claimed, and that the statistics were manipulated to make it seem far better that it is, while underplaying the potential risks.

In Yee’s case, like in many other cases before her, perhaps there is no point asking the same question: What has gone wrong? Things seem to go wrong most of the time. Allow me to think aloud:How could a Stage 2 breast cancer kill a patient within four years? Would she have died if she was to do nothing?

Breast cancer is less common among those in their thirties, but if breast cancer occurs in younger women, it tends to be more aggressive than in older women. While this may be true, some people want to make us believe that it is because Yee was young and had an aggressive type of cancer that make her treatment ineffective. Let me invite you read the case of three ladies who were before forty when they had cancer yet they survive. The only thing they did differently was that they did not blindly their doctors – they declined chemotherapy, radiotherapy or hormonal treatments.

Tee, a 38-year-old lady who was diagnosed with breast cancer in October 2005 (note: at about the same time as Yee) and she refused chemotherapy. Tee is still alive as of this writing (March 2009) while Yee died in February 2009. You can read Tee’s story in our Case Report series.

Sue was 39 years old when she discovered 2 lumps in her right breast in 2003. She underwent a mastectomy. Her oncologist told her that with chemotherapy she would have 5% chance more of survival. She but declined further medical treatment, including tamoxifen as suggested by her surgeon. Sue change her diet and lifestyle and took herbs. It has been 6 years now and Sue has been leading a trouble-free life.

Julia discovered a 4 cm lump in her breast in 1995. She was then 36 years old. She was asked to undergo a mastectomy. She declined and never went to see her doctor again. She declined chemotherapy, radiotherapy or hormonal therapy and decided to seek alternative healing. She father is an herbalist and naturally she turned to him for help. Julia’s healing journey along the uncharted path is interesting and sometime dangerous. But to fact remains she is still very much alive and well as of this writing (2009). It was 14 years that she was first diagnosed with cancer. The detail story of Julia is found in our book: The herbal option, Chapter 3.

Cindy was 34-years old when she was diagnosed with breast cancer in August 1994. She underwent a lumpectomy. Since the margin was not clear she was asked to undergo a mastectomy to be followed by chemotherapy and radiotherapy. She declined further medical treatment. She changed her lifestyle and diet, did qi gong and meditation and sought homeopathic therapy. It has been 15 years and Cindy has been leading a healthy without any problem (Chapter 2: The herbal option).

Dr. Gershom Zajicek, Professor of Medicine at The Hubert H. Humphrey Center For Experimental Medicine and Cancer Research, The Hebrew University of Jerusalem, Israel (http://www.what-is-cancer.com) wrote: Modern medicine has the best means to treat disease, yet the basic tenets of treatment are false.

Dr. Frank Daudert, Pro Leben Klinik in Austria said: Doctors are blindly giving chemotherapy  … while the cancer cells smile. Doctors give chemo, chemo, chemo. And patients die, die, die.

In their book: More harm than good, Alan Zelicoff, M.D., and Michael Bellomo, J.D./MBA, wrote: (Physicians are) taught that doing nothing almost guarantees that the patient will suffer and that doing something outweighs doing nothing. The truth is that the vast majority of cancer – once spread – remain incurable despite the availability of many dozens of new chemotherapeutic drugs and even the use of antibodies directed against cancer cells.

Richard Deyo and Donald Patrick, professors, University of Washington, Seattle, USA, wrote in their book: Hope or hype – the obsession with medical advances and the high cost of false promises: We are born with our own blind trust in a medical establishment that preys on our deepest fears, all the while purporting to ride to our rescue with “miracles cures.” Indeed many medical advances do offer real advantages but there are as many others that offer little, if any, advantage and many have alarming side effects … marginally effective at best – and sometimes downright dangerous …. They often lead to useless, harmful and unnecessarily expensive care … When doctors introduce new products good money often trumps good science.

 

Surgery, Chemotherapy, Radiotherapy and Hormonal and Targeted Therapy Did Not Cure Breast Cancer

Case 1

Fay (not real name) is a 45-year-old Malaysian. She was diagnosed with breast cancer in September 2006.

  • She underwent a mastectomy with axillary clearance (removal of lymph nodes).
  • After the surgery she received 25 radiation treatments and six cycles of chemotherapy. The drugs used were 5-FU, epirubin and cyclophosphamide (FEC). All treatments were completed in April 2007.
  • Every 4 months Fay went back to her oncologist for routine surveillance check up. Everything was alright.
  • In August 2008, cancer was found in her bones – L2, L5, sacrum and pelvis.
  • She had been on tamoxifen for almost 2 years (November 2006 to August 2008). Tamoxifen had failed and the doctor suggested that she take another drugs, Arimidex.
  • She received to receive more chemotherapy and suffered badly from the side effects.

Case 2

Rin (not real name) and is a 40-year-old Indonesian lady living in the United States. She wrote:

  • First I was diagnosed with breast cancer in December 2004.
  • I did the lumpectomy on the left breast in February 2005.
  • After the surgery, I received 8 cycles of chemotherapy. After the chemotherapy I had menopause.
  • I then had radiotherapy for 35 times and I finished it in October 2005.
  • I took tamoxifen, 20 mg once a day.
  • I did regular check up with my oncologist every 6 month and I did yearly mammogram and the past 2 years I also did the bone density test.
  • In August 2008, I started feeling pain in my left leg and sometimes in my left arm. The pain did not go away and it hurt more and more. Then I was not able to and walk straight and could not bend. It was very hard for me to go up and down the stairs.
  • In November 2008, I had a whole body scan and also CT scan. The cancer had spread to the bones –  left humeral head, left femur and L5.
  • I again did radiotherapy for the effected area for 10 times.
  • In Dec 2008, I developed blood clots in my left leg.
  • My doctor changed my medication from tamoxifen to Arimidex.

Case 3

Gay (not real name) is a 43-year-old Australian. She was diagnosed with breast cancer in 1999. She wrote:

  • I received 6 months of chemothrapy and 3 months radiation therapy.
  • Then I was started on tamoxifen for 5 years followed by Arimidex.
  • I have had no problems until the past 6 months. I had a slight pain in my right upper abdominal. My tumor markers were elevated.
  • After a number of scans, it turned out to be bone metastases.

Case 4

Sri (not real name), 57-year-old Indonesian, was diagnosed with left breast cancer in 2003. She underwent a mastectomy followed by chemotherapy and radiotherapy. At the time we talked to her, Sri appeared to have chemo brain and was unable to recollect the details of her treatment. Her response to our questions was also very slow. Sri received all these treatments in New Zealand.

Sri went back to her doctor for routine check up and was told everything was fine. However, in 2007, she did not feel well. Further examination indicated bone metastases. She again received six cycles of chemotherapy and 10 radiation treatments. All treatments were completed in November 2008. Sri came to Penang in February 2009 and did a CT scan. The results indicated the following:

  • Lesion in T1 and T5 vertebrae.
  • Nodule in C5 and lesion in L4 vertebral bodies.
  • Several lytic lesions in the left iliac bones.
  • Suggestive of liver cirrhosis.

What can we learn from these four cases?

1. These patients had undergone all the required medical treatments – surgery, chemotherapy, radiotherapy, and oral drugs – tamoxifen and Arimidex. They had received the best that medical science has to offer but cancer still recurs.

2. Oncologists say all these are treatments are scientifically proven, FDA-approved backed by data reported in peer-reviewed medical journals. The questions are: What is so great about all these? Why do these patients still suffer metastasis? What is the “real and honest” truth about all these treatments?

3. Does it ever cross somebody’s mind that the inability to cure or the ability of the cancer to spread could also be due to the treatments themselves?

4. Look at these cases again. Fay in Malaysia suffered metastasis 1 year and 4 months after completion of her medical treatment. Rin from USA and Sri in New Zealand suffered metastasis barely three years after her treatment while Gay from Australia had metastasis about eight years after her treatment. These cases reflect similar problems faced by most patients everywhere in the world. It does not matter where you live and who or what you are, doing the same thing produces the same results.

Einstein said: Insanity is to the do the same thing over and over again and expecting different results. Can you learn anything from the wisdom of this great Man of Science? Patients in the USA,Australia, New Zealand and Malaysia received the same kind of treatments and all of them ended up with the same results. Over the years, I have observed similar stories being repeated over and over again so much so that bony metastasis can or is expected after such treatments.  To expect otherwise is what Einstein said is insanity.

The questions that boggle the mind are: Why are those in the know NOT doing anything about it?Why are patients kept in the dark and not warned about this possibility? Perhaps we can do MORE than just prescribing drugs? Tamoxifen is supposed to prevent recurrence but in all the cases above, it has failed miserably. Why don’t we look beyond what are being done today?

 

Surgery and Chemo But Her Breast Cancer Remains Incurable

This is an e-mail I received in late November 2010.

Dear Dr. Teo,
My mom is 68 years old. She got breast cancer stage 3 B in June 2008, after a checkup done in Bandung, Indonesia and confirmed by the National Cancer Centre, Singapore.Due to my working place in Singapore, she was willing to come here to do the treatment (2 times surgery and 18 times chemotherapy) where I can take care and accompany her through this painful treatment. But after 2 years with 18 times chemotherapy, the cancer was not cured.

Last week the chemo doctor mentioned that there is no need for her to take the chemotherapy again because there is “NO HOPE TO CURE and CAN ONLY PROLONG HER LIFE A BIT.” The cancer now spreads to the skin and made her left arm swollen. She felt very uncomfortable due to hardness, redness, hot and pain at her skin.Last 2 weeks, my Indonesia’s friend introduced me to keladi tikus (founded by you). She felt better and the wet skin was getting dry without bad smell under her left arm.I am very sad and keep praying that she has the strength to go through this. I believe that God will cure my mom if I have faith and trust HIM. I really hope to receive your help and great support for my mom treatment.On 7 November 2010, Intan (not real name) and her daughter came to see us in Penang. It was indeed a sad and depressing night for me to see Intan struggling to walk into our centre. In this age of science and technology, we are made to believe that we have all the answers to our problem. But the case of Intan, that I saw tonight, testified to the reality of the present situation. The words of Amy Cohen Soscia, a breast cancer patient from the US, came to mind: “There is no cure for metastatic breast cancer. It never goes away. You just move from treatment to treatment.”

Medical History: Sometime in 2008, Intan fell and felt pain in her left breast. An USG and mammography in Bandung indicated a lump in her breast. She subsequently went to Singapore and underwent a mastectomy. The histopathology report confirmed the 5.5 cm tumour was an invasive carcinoma, grade 3. Twelve out of the 15 lymph nodes were  infected with cancer.  The doctor told Intan she has only three months to live. Since modern medicine could not offer her much hope, her daughter turned to a Chinese sinseh for help. She was started on herbs. Intan pulled through for nine months after which she became breathless. She was admitted into the Changi General Hospital. The doctors tapped 3.5 litres of fluid from her lungs. She was then sent to the Singapore General Hospital for follow up treatment.
In June 2009, she was started on oral chemotherapy – using Xeloda for 2 months. This treatment was not effective. The doctor switched her to intravenous chemo using Vinorelbine. After 2 cycles, this treatment was deemed not effective. Intan underwent another 4 cycles of chemo with Vinorelbine + Gemcitabine. This combination was also not effective. The doctor switched drug to only Doxorubicin. Intan received 7 cycles of this mono-drug therapy. This too was not effective. The doctor switched to Taxol and Intan received 2 cycles of this treatment. Again the result was not good. Intan was put on Xeloda again for a month and after that she was switched to another hormonal therapy (which the daughter forgot the name). The cancer still spread. Intan was again put on Taxol for another 2 cycles. After Taxol, the doctor suggested Herceptin. Intan declined further medical treatment.

All said, it was a bitter and frustrating experience for Intan.